Media Centre

Lumos holds a variety of events throughout the year which help to share knowledge about de-institutionalisation and how to develop services that are needed to support children to live within a family.  Read more about Lumos's training courses, conferences, workshops and speaking engagements.

events

15/06/2017
3:00pm-4:30pm
UN Headquarters, Conf. Room 11
Side Event Conference of State Parties 2017
The 2030 Agenda for Sustainable Development is committed to ending violence against all children globally (target 16.2), however in order to do violence against children with disabilities must be specifically addressed. Children with disabilities are at an increased risk of experiencing physical, sexual, emotional abuse and neglect, as well as other forms of violence, than their non-disabled peers, and specific steps need to be taken to confront these human rights violations. This event aims to explore how both governmental and non-governmental partners can work together to ensure all children live a life without violence.
 
The objectives of this event are to: present the commitments in the 2030 Agenda on Sustainable Development to end violence against all children; present the work of the Global Partnership on Children with Disabilities Task Force on Child Protection and the Global Partnership to End Violence Against Children to identify avenues for collaboration; present examples of initiatives to combat violence against children with disabilities at the country level; and propose concrete actions to take to end violence against children with disabilities on a national level.
 
Speakers include:
 
  • H.E. Mr. Sandoval, Deputy Permanent Representative of Mexico to the UN in New York
  • H.E. Mr. Sabarullah Khan, Deputy Permanent Representative of Sri Lanka to the UN in New York 
  • Mihaela Ivanova, self-advocate and Lumos employee
  • Susan Bissell, Director, Global Partnership to End Violence Against Children
  • Kathryn Leslie, Child Protection Specialist, The Office SRSG on Violence against Children
  • Lisbet Brizuela, Director for Mexico, Disability Rights International-México

 

For more information: 

  • You can download the flyer here
  • You can download the concept note here
14/06/2017
4:45pm - 6:00pm
UN Headquarters, Conf. Room 11
Side Event at the Conference of State Parties 2017

At the end of 2016, the UN appointed an independent expert to conduct a study on children deprived of liberty, including children confined to institutions. Children with disabilities are at an increased risk of being locked in these institutions or harmful health-care facilities in the name of care and treatment, where instead they are subjected to violence at an immense scale, including physical, sexual, mental abuse and neglect, as well as involuntary or inappropriate medical treatment. This study is imperative in shedding light on the number of children living institutions and their wellbeing, allowing states to make the necessary amendments and bettering the lives of all children, including those with disabilities.

The objectives of this event are to: review the forthcoming Global Study on Children Deprived of Liberty through a disability lens and make recommendations to ensure the full inclusion of children with disabilities living in all forms of institutions; raise awareness among those attending the Conference of State Parties about the Study on Children Deprived of Liberty and emphasize its potential to highlight human rights abuses against children with disabilities deprived of their liberty; and encourage relevant participation on the part of States, DPOs, NGOs, and other stakeholders.
 
Speakers include:
 
  • Dr Muhannad Al Azzeh, Secretary-General of the Higher Council for Affairs of Persons with Disabilities (HCD), The Hashemite Kingdom of Jordan
  • Mihaela Ivanova, self-advocate and Lumos employee
  • Markus Schefer, Professor for Constitutional and Administrative Law at the University of Basel, Switzerland
  • Sue Swenson, President Elect, Inclusion International
  • Emina Cerimovic, Researcher, Human Rights Watch
  • Georgette Mulheir, CEO Lumos

For more information: 

  • The invitation is available to download here
  • The event concept note is available here

 

02/08/2016
Hallam Conference Centre, 44 Hallam Street, London, W1W 6JJ
This four-day introductory course has been designed specifically for an international audience to guide policymakers and senior level managers and practitioners through the process of deinstitutionalisation (DI) and to help identify what needs to be done, at what stage and by whom. It helps explore the risks and the challenges of this process but also offers practical solutions that have been developed by peers and DI experts with decades of experience in deinstitutionalisation programmes. At the end of the course, delegates will understand the key principles of a thorough methodology of deinstitutionalisation and will have the tools to begin planning a DI programme. Please be aware that in many cases Lumos provides further training on each element of the methodology to support programmes in detail. The training is free to attend for relevant policy makers and senior level practitioners but delegates are responsible for their travel and accommodation costs. The training will be delivered in English only but we welcome enquiries about the course being developed in other languages for specific audiences.
 
Who should attend:
 
  • Government Ministers
  • Senior policy-makers who are involved in social
  • welfare and reform, children’s services, education or
  • health services.
  • Local politicians and local government officials with
  • responsibility for children’s services
  • NGO staff responsible for designing and delivering
  • DI services
  • Organisations/government agencies responsible for
  • funding children’s services

Please note the course is now full but let us know if you would be interested in attending the course in 2017 by emailing training@wearelumos.org.

Download the flyer and programme here. 

9th Conference of States Parties to the CRPD Side Event
14/06/2016
11:45am - 1:00pm
Conference Room D, United Nations, New York
Nolan.Quigley@wearelumos.org
As the focus of this year’s Conference of States Parties is “Implementing the 2030 Development Agenda for All Persons with Disabilities: Leaving No One Behind”, this side event will look at the need to develop national and international methodologies to count children with disabilities living outside of households, as well as the role that national level indicators and disaggregated data collection will play in ensuring that the rights of children and adults living in institutions or otherwise outside of households are met.
 
The Convention on the Rights of Persons with Disabilities affirms that all persons with disabilities have the right to live the in the community and right to a family life. Children with disabilities whose immediate family are unable to care for them should be provided with the opportunity to be cared for by their extended family or in a family-based setting in the community. Furthermore, under the Convention on the Rights of the Child every child has the right to be cared for by their parents and to be protected from abuse and neglect. Despite these provisions, a significant number of children with disabilities worldwide continue to live in residential institutions. Despite the CPRD stressing the obligation on States to protect children with disabilities from any form of torture or cruel, inhuman or degrading treatment or punishment and exploitation, violence and abuse - the institutionalisation of children with disabilities continues to cause irreversible harm.
 
The new Sustainable Development Goals (SDGs) provide a framework which can help achieve many targets linked to health, nutrition, education, and protection from violence, exploitation and abuse for children with disabilities. However, there are some fundamental challenges which need to be addressed to ensure that the SDGs will reach all children and marginalised adults.
 
The side-event will aim to influence ongoing debates in relation to counting children outside family care, disaggregation of data by disability and care status, and the forthcoming UN Global Study on Children Deprived of Liberty.
 
This event is hosted by: The United Kingdom Mission to the United Nations
And co-sponsored by: the Delegation of the European Union to the United Nations and Lumos
 
The agenda and event flyer are available to download below: 
 
EVENT FLYER (with list of speakers) 

 

07/07/2015
Date: Tuesday, July 7, 2015 to Friday, July 10, 2015
Time: 9:00 - 17:00
Country: United Kingdom
Contact: James Chamberlain
Telephone: 020 7253 6464
 
In order to transform outdated care systems, a process of deinstitutionalisation (DI) needs to take place whereby all current institutions for children are closed and new services created that meet the needs of all children and help to keep families together, in their communities. In order to achieve this transformation, politicians, policy-makers, senior managers and practitioners can be faced with an incredibly daunting task that spans policy, legislation, funding and communications, as well as social, education and health services.
 
Closing institutions is, truly, only one part of the process. This four-day training course has been designed specifically to guide policy-makers and senior level managers and practitioners through the process of deinstitutionalisation (DI) and to help identify what needs to be done, at what stage and by whom. It helps explore the risks and the challenges of this process but also offers practical solutions that have been developed by peers and DI experts with decades of experience in deinstitutionalisation programmes.
 
The week long training is free to attend for relevant policy makers and senior level practitioners but delegates are responsible for their travel and accommodation costs. The training will be delivered in English only but we welcome enquiries about the course being developed in other languages for specific audiences. Contact Tsvetelina.Smale@wearelumos.org or james.chamberlain@wearelumos.org for more information.
 
Download the event documents here and here
09/06/2015
Date: Tuesday, June 9, 2015 
Time: 16:45 to 18:00
Country: United States
Venue name: UN Headquarters - Conference Room 12
 
On 9 June 2015, Lumos, Human Rights Watch, OHCHR and Light for the World will be co-hosting a workshop at the UN Conference of States Parties on the Convention of the Rights of Persons With Disabilities on how to make deinstitutionalisation and support for families a global priority. The event, kindly sponsored by the Government of New Zealand and the Delegation of the European Union to the UN is open to anybody with a UN pass or already accredited to attend the Conference.
 
Learn more about the Sustainable Development Goals (SDGs) and our campaign to #LeaveNooneBehind here.
 
For more information about the event, see here
11/09/2014
Date: Thursday, September 11, 2014 
Time: 09:00 - 14:30
Country: Moldova
Venue name: Hotel Codru, Chisinau, 127, 31 August 1989 Street
Contact: Natalia Rotaru
Telephone: (+373 22) 240 238
 
Lumos, together with the Ministry of Labour, Social Protection and Family, of the Republic of Moldova are holding a conference to present the outcomes obtained within the development process of the social service providers accreditation mechanism in the Republic of Moldova and to underline the role of social service providers accreditation for the development of social services and enhancement of their quality, in accordance with the beneficiaries’ needs.
 
Download the Conference Agenda here
26/06/2014
Date: Thursday, June 26, 2014 
Time: 09:30 to 16:30
Country: United Kingdom
Venue name: Shine, Harehills Road, Leeds LS8 5HS
Contact: John Steele
Telephone: 0207 253 6464
 
People with learning disabilities from across the UK will draw up a manifesto for the Government to end institutionalised care, and give them greater control of their lives, at a ground-breaking national event later this month. Our Voice, Our Choices, Our Freedom has been prepared by two leading organisations which believe people with learning disabilities have the right to live and flourish in their communities, not in closed institutions, and which work together to ensure the voices of people with learning disabilities are at the heart of the policy and decision-making that affects them. The organisations hosting the event are CHANGE, which campaigns for the rights of adults with learning disabilities, and J.K. Rowling’s charity, Lumos, which works to end child institutionalisation in Europe and worldwide.
 
 
Download the event documents here and here
27/02/2014
Date: Thursday, February 27, 2014 - Friday, February 28, 2014 
Time: 09:00 - 17:00
Country: Bulgaria
Venue name: Ramada Hotel, Sofia
Contact: Nela Vamporova
 
This is a two-day seminar on the Transition from Institutional to Community-Based Care which help plan will how Bulgaria will access EU funds in its de-institutionalisation programme.
13/11/2013
Date: Wednesday, November 13, 2013  to Friday, November 15, 2013 
Time: 12:00 - 17:00
Country: Moldova
Venue name: Leogrand Hotel & Convention Center
Contact: Natalia Rotaru
 
Conference on the development of inclusive education practices in the Republic of Moldova. Led by the Ministry of Education in Moldova and Lumos.
 
For more information, see here.  
24/10/2013
Date: 24.10.13 to 25.10.13
Time: 09:00AM to 05:00PM
Country: Bulgaria
Venue Name: Hall Venus – 3d floor, 9 Dondukov blv., Sofia
Contact: Nela Vamporova

 

In the framework of the World Spina Bifida and Hydrocephalus Day, Lumos and the International Federation for Spina Bifida and Hydrocephalus present the two day event 'Treatment and Experiences of Children with Hydrocephalus in Bulgaria and their Families'. In addition to raising the awareness of the link between hydrocephalus and the institutionalisation of children into so called 'orphanages', the event will also focus on building the capacity of parents organisations to campaign and raise awareness of hydrocephalus treatment and related issues.

 

 

USEFUL LINK : 25 OCTOBER - WORLD SPINA BIFIDA & HYDROCEPHALUS DAY

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