Children’s Rights to Survival and Development: Ensuring access to treatment for children with hydrocephalus

This report provides a summary of work undertaken by Lumos - together with governmental authorities, international partners, local medical professionals and families - to ensure that all children born with hydrocephalus receive the life-saving treatment they need, and which is their fundamental human right.

It identifies the challenges involved in changing systems, including financing mechanisms, to ensure treatment for children. It provides examples of good practice, as well as ideas for developing support systems for parents and children.

It is hoped that the successes recounted in this document will be of use to others facing similar challenges, as well as inspiration for all parents of children with hydrocephalus and the medical professionals who fight to save and improve their lives.